Knowing it turned out be her last birthday, the clip of her in the pool saying that her 10th birthday was the best day of her life is heartbreaking. But it also made me smile, knowing that she had a lot of good experiences and was happy in her short life. #shilohpepinmermaidgirl
Love her. At the end of the clip, there's something so very "Masterpiece Theatre" about her sitting in that inflatable chair with tented fingers dispensing her wisdom. It's fantastic. #shilohpepinmermaidgirl
I have really enjoyed following her story. It saddens me to hear that she has passed, but her outlook on life has certainly blessed many. #shilohpepinmermaidgirl
@Bunsen Honeydew: See, I wouldn't characterize that girl as sweet at all, and that's what I loved about her. She was full of sass and spitfire, and, as we saw on Oprah, she was nobody's little princess. I find her ability to live her life on her terms to be the most inspirational part. #shilohpepinmermaidgirl
@ccchild: I didn't mean I saw her as some sort of "sugar and spice and everything nice" deal, I just saw her joy and zest for life as a very sweet, touching thing. Similar idea, different intended meaning behind the words.
It's strange how sad I feel--I didn't know her, had only seen her on television a few times. But she seemed so smart, so happy, so sassy--I can't believe she's gone. #shilohpepin
I never saw this girl on Oprah, but I read about her appearance on Jezebel. I always get so upset when a child with a chronic medical condition dies, even though I know life can end at any minute. She reminds me that I am very lucky to be here and live the life that I do, in spite of (maybe because of) the medical problems I had as a child.
I don't know if anyone remembers Stormie Jones - she had the world's first heart-liver transplant. When I stayed at the Ronald McDonald House during one of my many bouts of illness, she was there, and she had such a great personality. She was always more concerned with the other kids than herself. I think kids with these chronic illnesses and disabilities have to develop larger-than-life personalities to cope with how different their lives are from other people's. #shilohpepin
@chatterboxwriting: I am the mother of a profoundly disabled child. One of the hardest aspects of this life is that you get to know other families and other kids and, sometimes, those kids die. Before my son was born, I didn't know anyone who had lost a child; now I have lost count of the kids' funerals I have been too. It never gets easier.
It's also a brutal reminder that, in our sanitised, medical-miracles-are-ten-a-penny world, there are still unsolvable problems and unhappy endings. And yet, amidst it all, I have seen more real joy, generosity of spirit and true serenity than I ever knew existed.
My heart goes out to the parents of this gorgeous girl, I know how hard this time is for them, and how gut-wrenching the pain they must feel. I hope they are comforted by the huge outpouring of love the world shows for a little girl that it never really knew. #shilohpepin
My breath just caught when I read that. It's so unfair. I really hope I can honor her in some way just by remembering her confidence and hope. She was happy with herself the way she was, and cherished her individuality. Man, I hope I can be like that one day. #shilohpepin
12/14/09
What a great dad.
12/14/09
12/14/09
12/14/09
10/26/09
10/26/09
Rest in Peace, little one. #shilohpepinmermaidgirl
10/26/09
10/26/09
10/26/09
10/26/09
10/26/09
10/26/09
What a sweet little girl. There's a lot to learn from her attitude. #shilohpepinmermaidgirl
10/26/09
10/26/09
#shilohpepinmermaidgirl
10/24/09
10/24/09
I don't know if anyone remembers Stormie Jones - she had the world's first heart-liver transplant. When I stayed at the Ronald McDonald House during one of my many bouts of illness, she was there, and she had such a great personality. She was always more concerned with the other kids than herself. I think kids with these chronic illnesses and disabilities have to develop larger-than-life personalities to cope with how different their lives are from other people's. #shilohpepin
10/25/09
It's also a brutal reminder that, in our sanitised, medical-miracles-are-ten-a-penny world, there are still unsolvable problems and unhappy endings. And yet, amidst it all, I have seen more real joy, generosity of spirit and true serenity than I ever knew existed.
My heart goes out to the parents of this gorgeous girl, I know how hard this time is for them, and how gut-wrenching the pain they must feel. I hope they are comforted by the huge outpouring of love the world shows for a little girl that it never really knew. #shilohpepin
10/24/09