I did a couple TV interviews about 6 years ago because I was concieved through artificial insemination and found my donor. My family and I were guests on 60 Minutes and Oprah. Our experience with Leslie Stahl and 60 Mins. was AMAZING! Everyone was nice and they seemed truely interested in our story and not JUST our story, but the feelings and emotions that where going on in the back ground. However, when we went to Chicago to be on the Oprah Show it was the total opposite. Oprah cut myself and my Donor off when we were trying to answer her questions, she never talked to us unless the cameras were rolling and when the cameras weren't rolling she was complaining about lighting, make-up, mic placement, etc and there is plenty more. It seemed to me, we were simply there to get her ratings and that was all. As much as that ticked me off, to see her try to put a 7 year old with ANY kind of mental illness through, that just burns me up! To run a TV show that lives for "Human Interest" stories, she seems to have little interest in other humans except what they can do for her! Just my 2 cents!! #oprahschizophrenic
@funnyface: Yes, he is very devoted to his daughter, and that's totally natural.
But, they are asking a school system to incorporate their daughter into a classroom with healthy children. Sadly, she is far too sick to be there. They are asking a teacher to do the heavy-lifting for them during the day, and teachers are too under-paid and under-qualified to conduct a class and take care of the special needs of a severely mentally-ill child. The two worlds are too different. He goes so far as to hold the teacher partially responsible for Jani's "suicide" attempt!
While I can feel his frustration jump off the page, ultimately, he is the most responsible for his daughter's care. NOT a school system: they cannot do the parenting and care of a schizophrenic. That is not what education for children is designed to do.
"I have had to recall a memory of once trying to throw Susan out of our moving car because I was so angry."
"So what would set me off? It was always the little things. Perhaps something would spill on the floor (I did most of the cleaning)."
"I was never as bad as Jani, but my experience gives me hope that maybe one day Jani can learn to control her violent urges."
"Who I was at work was very different from who I was at home. The girls who I flirted with on campus never saw the side of me that Susan and Jani saw."
"Family failed us repeatedly. All of them. Susan's family and mine (although Dad was always good for a check when we needed it)."
"I am convinced Susan's grandmother is still alive only because God simply doesn't want her."
"In the meantime, I returned to flirting on Facebook with various women (sorry, girls)."
"After inquiring as to her checking account (Susan and I have separate accounts- a legacy of my near affair ten months ago), I learned that the one thousand dollars that Susan's mother had transferred to Susan at my request... was gone. Susan had, without thinking, paid her student loan. I blew up."
"I will not wish any ill on Andy though because if he has a soul, it will eat him alive. Enjoy the rest of your life, brother-in-law, and take care of my nieces. Tell them they are always welcome, even if you are not."
And this is just from ONE ENTRY on Jani's father's blog. The guy sounds like the furthest thing from "wonderful" I can imagine. I pity his wife and daughter more than words can say.
@cirocco: I'm so glad a starred commenter did a slice and dice of his behavior. If it was me, I'd be on the Worstie list, for sure. His immaturity and blame-placing is extreme. He's probably a huge contributing factor in his girls' illness.
@cirocco: She wasn't saying he is wonderful, but that the blog is wonderful. And I agree. It appears to be a shamelessly accurate portrayal of their lives, which is both interesting and more honest than many bloggers.
@OneTwoPunch: I don't think anyone wins Worsties just for directly quoting the subject of an article. In the guy's own words, he's a violent philanderer who hits the rest of the family up for money and then publicly excoriates them when they don't pony up. He's a grown man who's flaming his brother-in-law on his blog for defriending him on Facebook. That is just not on.
@cirocco: I hesitate to get involved in the conversation, as it's late, but I, for some reason, read the entire blog, around last month. The guy sounds like he's fighting to keep it together; their family is in a very unique and statistically unusual situation, quite far from ideal. The stress level may contribute to the stress level and tone of many of the posts.
I know that Oprah has done a whole lot more good than anything bad, but for some reason she has just always rubbed me the wrong way for this exact kind of stuff.
@The Queen of No: Pretty much this. I think it all started when I was watching her interview someone about their Tragic Life Story, and they accidentally showed Oprah motioning to the camera man to make sure he got a close up of her (Oprah, not the interviewee) crying.
I really don't get all the Oprah hatred. T.V. is a tricky medium and if you caught the middle of this interview then you would be very confused as to why this child is running around and throwing a tantrum. The whole thing about Oprah not being used to this kind of rejection isn't a very accurate statement to me. How many people have interacted with a schizophrenic child before? She had her work cut out for her. Having control in an interview is the whole point. Otherwise you'll have a Jerry Springer-style show.
@heywhat: I agree. We need to not be so snarky ALL THE TIME. Oprah actually attempts to discuss complex issues, and she does help people less privileged. Compare this to the majority of the television out there, and I can't see why there's constant criticism of her here.
@sydbarrettsaves, emissary of hell: Yeah, you would think someone like Oprah, a woman born into poverty who worked hard and made something extraordinary out of herself would get lots of love and praise from this crowd. I mean if the world's first self-made, black female billionaire doesn't get any love here then who does?
This clip isn't really reflective of the rest of the segment on Jani's illness. If you go to Oprah's website you can see several clips of her where she does pay attention and describe her symptoms to Oprah and other interviewers. Frankly I'm impressed that they got that much out of her, under the circumstances.
Also, my heart breaks for this girl's parents. I can't imagine having to deal with something this difficult, especially with no end in sight. That's like my worst nightmare about having kids--the idea that there could be something terribly wrong with them that you can't fix and you'd have to spend the rest of your life dealing with it.
@Helen Valentine: I am the mother of a profoundly disabled child who "can't be fixed" so there's "no end in sight" and I'm going to spend the rest of my life dealing with it. He's one of the best things that ever happened to me.
Put your prejudice away and, trust me, there are far worse nightmares than having a kid with a disability. I hate that so many people seem to think that this is the absolute worst thing that could ever happen to them. What does that say about attitudes towards people with disabilities? Do you know how often i hear "I couldn't do what you do"? Well, guess what? You could and, chances are, like me you'd do just fine.
Remember, perfection comes in all sorts of shapes. Sometimes you just have to open your eyes and see it.
@Niki S: It's not so much that this is a kid with a disability that makes it so terrible. It's that this is a kid whose disability is such that she lives in constant terror of imaginary rats biting her if she doesn't try to eat her brother. This is a girl who started trying to plan her suicide at age 4. The only thing worse than having a child in such pain would be *being* a child in that pain.
So I was home sick today and actually caught this entire episode. It broke my heart because the ultimate message one could gleam from everyone's interactions with Jani (Oprah and parents included) is that she needs help they can't provide. Childhood schizophrenia is extremely rare and difficult to find treatment for. Oprah isn't the only one having a hard time talking to Jani- imagine her special ed teachers, kids on the playground, or really anyone who crosses her path. I don't think the doctors are quacks, just very challenged by this type of patient.
Also, it was really sad when her dad had to admit that he tried to kill himself at one point. I kept wishing throughout the whole show that Oprah was going to give them some kind of help- maybe a house, a special nanny, groceries, anything! I admire the parents for being so selfless and trying as hard as they can to keep their children happy and healthy. It clearly is a tough job.
@MijaMia: Oprah does a show of "Harpo Hookups". Anyone can write in and request a Harpo Hookup--something they need help with in their lives. I'm going to write in at oprah.com and request a Harpo Hookup for this family--a house with appropriate safety measures so they can all be under the same roof, and trained professionals to come watch Jani once a week and a sitter for Bodhi once a week so mom and dad can get out of the house for dinner or whatever. Maybe if we all write in, Harpo fairy will grant our wish.
This is a blog, not a peer reviewed medical journal. I think we should allow people to vent frustration over aspects of their field they find problematic, or the representation of their field within the mainstream media.
I know plenty of therapists and physicians who make "declarative statements" such as Tegan's outside of their practices. This does not negate their capacity to be effective at their job.
I understand that psych. issues are very very personal to many people, but you have to also understand that for the professional working in this domain, they don't necessarily live with these issues on an intimate level, and their statements aren't meant to demean the patients, but should be understood as criticism of their profession.
We often fail to see doctors and therapists as people, with real emotions, who don't always - especially not on feminist blogs dealing with pop-culture - think with their ethical filters in place. They do sometimes say to their friends, "i had a patient and they were so fucked-up. Oh my god, I was so pissed off at how my colleague diagnosed him, etc. etc."
@jenguyver: Sorry, but I disagree. I'm not a therapist, but I work in a job where I talk on the phone with people in delicate mental states on a daily basis. Sometimes my coworkers joke about how it's rude of them to avoid our calls, but we're always kidding. We don't make ridiculous declarative statements. We acknowledge their stress, but we don't belittle them. And Tegan making some kind of diagnosis after seeing a 2 minute clip reflects badly on her skills as a therapist.
@jenguyver: I think the fact that she self-identified as a therapist negates the point you're making here a bit. Or, rather, exempts her from this very valid point. By framing her statement in terms of her profession in a public forum, she has to be aware of the implications of that.
If anyone wants to express doubt, that's one thing. But to cite your profession and then proceed to disagree with a diagnosis is something else entirely.
It'd be like listening to someone discuss their symptoms of stomach cancer, which can at the outset sound very similar to an ulcer and saying "I'm a doctor, and I heard you discuss very briefly your symptoms and have to disagree with the opinion of your physician, who has worked with you on an extended basis, and ran tests to back up their diagnosis."
Very different thing than doctors coming home after work, and discussing their day. And if they're being ethical about it (and, let's face it, everyone should try and operate with their ethical filters in place, even if they're not on the clock) they'll have a standing understanding with the people they vent to that this isn't for general discussion.
@AppleBrownBettyComingThrough: I got the feeling Oprah does not have a huge comfort level with children. Because they don't come with a built-in awe of her.
@Elizabooth: I don't quite understand the scenario as it's being presented here. Why was Oprah interviewing a child with a mental illness? That aside, it's possible that Jani's parents or doctors lied about how responsive and well-behaved Jani might be.
Jani's incredibly complex. She's got an IQ of 146, but can flash-change from smiling to (quite literally) biting in an instant. There's no way Oprah wasn't told about a child who might attack her with absolutely no warning. And her dad's very clear about her behaviour. She's compelled to do things that, even as she does them, she really doesn't want to do.
This is a child who has made some genuine efforts to suicide, who runs into traffic, who gets told by an imaginary cat to hurt people or he'll hurt them. Baby voicing a 7-year old just doesn't cover it.
This seems really basic, but why the hell is she wearing her sunglasses? If you're trying to have a conversation with someone you've just met, some eye contact will go along way.
Especially with kids.
I'm not saying that was the barrier to conversation here, but it seems to me like Oprah had written off any kind of connection with this kid before she started, and was just going through the motions to have some footage to show of how "angry and damaged" this kid is.
i will echo others and ask please anybody who will judge the girl or her parents to read the LA times coverage and to read her father's blog.... her story is heartbreaking and her parents should be commended for handling her and her disease as well as they have. if anything her story can serve to remind us the virtue and simplicity of human love, the strength of family, the complexity of our bodies and minds....and not least, to open ourselves to treating mental illnesses with respect.
What makes this story even sadder is that her parents decided to have another child, hoping that she would be able to relate to a sibling, but now her little brother endures physical abuse from Jani and emotional neglect from their (understandably overwhelmed) parents.
@HerdingCats (could have been Renesmee): Her parents got pregnant again before Jani started getting violent and before any diagnoses, they just thought she was erratic. So they didn't have another with the idea it would fix her -- just to clarify.
Aww, poor gal. She's got a tough row to hoe, but with good family support, she should be able to make it (says the commenter who experienced the disorder through her grandpa as a kid).
@wednesdayam: Unfortunately, she hallucinates something like 90% of the time, and apparently childhood schizophrenia is 30 times worse than schizophrenia in adulthood. So it's the worst possible scenario, though obviously I hope things improve.
11/04/09
10/07/09
SHE CAN TELL, GUYS.
10/07/09
10/07/09
But, they are asking a school system to incorporate their daughter into a classroom with healthy children. Sadly, she is far too sick to be there. They are asking a teacher to do the heavy-lifting for them during the day, and teachers are too under-paid and under-qualified to conduct a class and take care of the special needs of a severely mentally-ill child. The two worlds are too different. He goes so far as to hold the teacher partially responsible for Jani's "suicide" attempt!
While I can feel his frustration jump off the page, ultimately, he is the most responsible for his daughter's care. NOT a school system: they cannot do the parenting and care of a schizophrenic. That is not what education for children is designed to do.
10/07/09
From [www.januaryfirst.org] :
"I have had to recall a memory of once trying to throw Susan out of our moving car because I was so angry."
"So what would set me off? It was always the little things. Perhaps something would spill on the floor (I did most of the cleaning)."
"I was never as bad as Jani, but my experience gives me hope that maybe one day Jani can learn to control her violent urges."
"Who I was at work was very different from who I was at home. The girls who I flirted with on campus never saw the side of me that Susan and Jani saw."
"Family failed us repeatedly. All of them. Susan's family and mine (although Dad was always good for a check when we needed it)."
"I am convinced Susan's grandmother is still alive only because God simply doesn't want her."
"In the meantime, I returned to flirting on Facebook with various women (sorry, girls)."
"After inquiring as to her checking account (Susan and I have separate accounts- a legacy of my near affair ten months ago), I learned that the one thousand dollars that Susan's mother had transferred to Susan at my request... was gone. Susan had, without thinking, paid her student loan. I blew up."
"I will not wish any ill on Andy though because if he has a soul, it will eat him alive. Enjoy the rest of your life, brother-in-law, and take care of my nieces. Tell them they are always welcome, even if you are not."
And this is just from ONE ENTRY on Jani's father's blog. The guy sounds like the furthest thing from "wonderful" I can imagine. I pity his wife and daughter more than words can say.
10/07/09
10/07/09
10/07/09
10/07/09
10/07/09
10/07/09
10/07/09
10/07/09
10/07/09
10/07/09
10/06/09
Also, my heart breaks for this girl's parents. I can't imagine having to deal with something this difficult, especially with no end in sight. That's like my worst nightmare about having kids--the idea that there could be something terribly wrong with them that you can't fix and you'd have to spend the rest of your life dealing with it.
10/07/09
Put your prejudice away and, trust me, there are far worse nightmares than having a kid with a disability. I hate that so many people seem to think that this is the absolute worst thing that could ever happen to them. What does that say about attitudes towards people with disabilities? Do you know how often i hear "I couldn't do what you do"? Well, guess what? You could and, chances are, like me you'd do just fine.
Remember, perfection comes in all sorts of shapes. Sometimes you just have to open your eyes and see it.
10/07/09
10/07/09
10/06/09
Also, it was really sad when her dad had to admit that he tried to kill himself at one point. I kept wishing throughout the whole show that Oprah was going to give them some kind of help- maybe a house, a special nanny, groceries, anything! I admire the parents for being so selfless and trying as hard as they can to keep their children happy and healthy. It clearly is a tough job.
10/07/09
10/06/09
I know plenty of therapists and physicians who make "declarative statements" such as Tegan's outside of their practices. This does not negate their capacity to be effective at their job.
I understand that psych. issues are very very personal to many people, but you have to also understand that for the professional working in this domain, they don't necessarily live with these issues on an intimate level, and their statements aren't meant to demean the patients, but should be understood as criticism of their profession.
We often fail to see doctors and therapists as people, with real emotions, who don't always - especially not on feminist blogs dealing with pop-culture - think with their ethical filters in place. They do sometimes say to their friends, "i had a patient and they were so fucked-up. Oh my god, I was so pissed off at how my colleague diagnosed him, etc. etc."
10/06/09
10/06/09
If anyone wants to express doubt, that's one thing. But to cite your profession and then proceed to disagree with a diagnosis is something else entirely.
It'd be like listening to someone discuss their symptoms of stomach cancer, which can at the outset sound very similar to an ulcer and saying "I'm a doctor, and I heard you discuss very briefly your symptoms and have to disagree with the opinion of your physician, who has worked with you on an extended basis, and ran tests to back up their diagnosis."
Very different thing than doctors coming home after work, and discussing their day. And if they're being ethical about it (and, let's face it, everyone should try and operate with their ethical filters in place, even if they're not on the clock) they'll have a standing understanding with the people they vent to that this isn't for general discussion.
10/06/09
10/07/09
10/06/09
"No, I understand that it was the disease," but obviously looked pissed and was not at all empathetic. What the hell? This kid is obviously very ill.
10/06/09
10/06/09
Jani's incredibly complex. She's got an IQ of 146, but can flash-change from smiling to (quite literally) biting in an instant. There's no way Oprah wasn't told about a child who might attack her with absolutely no warning. And her dad's very clear about her behaviour. She's compelled to do things that, even as she does them, she really doesn't want to do.
This is a child who has made some genuine efforts to suicide, who runs into traffic, who gets told by an imaginary cat to hurt people or he'll hurt them. Baby voicing a 7-year old just doesn't cover it.
10/06/09
Especially with kids.
I'm not saying that was the barrier to conversation here, but it seems to me like Oprah had written off any kind of connection with this kid before she started, and was just going through the motions to have some footage to show of how "angry and damaged" this kid is.
10/06/09
10/06/09
10/06/09
10/06/09
10/06/09
10/06/09