<![CDATA[Jezebel: medical mysteries]]> http://tags.gawker.com/assets/base/img/thumbs140x140/jezebel.com.png <![CDATA[Jezebel: medical mysteries]]> http://jezebel.com/tag/medicalmysteries http://jezebel.com/tag/medicalmysteries <![CDATA[Cold Case: Jane Austen]]> Jane Austen's death at the tender age of 41 has long perplexed scholars, doctors, and fans. And now, there's a lead:

There is, at present, a really interesting show on at New York's Morgan Library, "A Woman's Wit: Jane Austen's Life and Legacy." It involves numerous primary sources and altogether presents as complete a portrait as one can realistically find of the famously private novelist. But - and this might stand as a useful metaphor for Austen fandom in general - you can't visit the exhibit without being aurally assaulted by the voices of the pundits in the continuously-playing film The Divine Jane. Although the film is actually in only one corner of the room, the audio - of Fran Lebowitz, Cornel West, and four other "writers, scholars, and actors" talking about her influence on them - is broadcast, loudly, throughout the room as we attempt to read Austen's letters and contemporary ephemera. Fair enough, I guess; some of the quotes are interesting enough and we get it: she has a wide appeal and reach. But this film had exactly nothing to do with Jane Austen's life, and everything to do with these 20th century thinkers ("I fell madly in love with Elizabeth Bennett, and of course I identified with her"), and we weren't allowed to separate the two. (Watch it here if you want to share - or not - my intense irritation.) It was didactic, and it was telling. Jane Austen is public domain.

As is her death. And, sure, it's fascinating. But it's also a reaffirmation of her peculiar status, both of the world and stubbornly elusive. While researchers have hypothesized since the 1960s that Austen died of a form of the adrenal gland-impairing Addison's disease - based on the scant hints in her correspondence - now there's a new theory: TB. Katherine White, an Addison's researcher, sums up Austen's symptoms as "bed-ridden exhaustion, unusual colouring, bilious attacks, rheumatic pains." While these could fit Addison's, her mental lucidity (advanced Addison's would typically have involved discombobulation, as well as pain and weight loss) have led others to suggest lymphoma, and, now, tuberculosis.

This diagnosis depends upon interpreting Austen's description of her complexion as "black and white and every wrong colour" as a reference to under-eye circles rather than a more general discoloration. Nevertheless, argues White,

Loss of concentration is reported by more than half of contemporary patients during their pre-diagnosis illness, while extreme sleepiness, slurred speech, confusion or a semi-conscious state are characteristic of adrenal crisis. Vomiting did not feature in Jane Austen's final 48 hours. Her family did not report an emaciated appearance and took comfort in the fact that she did not suffer greatly during her final illness.

More likely, she writes in the journal Medical Humanities, it was bovine-borne TB, an ignominious and common complaint of the era.

The only thing that can be asserted for certain is the following, from the London Times :

Carole Reeves, the Outreach Historian at the Wellcome Trust Centre for the History of Medicine, University College London, said that it was impossible to diagnose cause of death with certainty so long after the event.

The paradox for me is this: doesn't it, ultimately, make us know Austen better in some ways to not know - as she didn't - the ultimate cause? In this, as in so many things, 21st century anachronisms have very little to do with the reality of her existence. (Not that I don't like a mystery as well as the next guy. Cue obligatory "truth universally acknowledged" reference. Oh, wait. )


Cause of Jane Austen's Death Not Universally Acknowledged
[Guardian]
Jane Austen Probably Died From Tuberculosis, Claims Scholar [TimesUK]
How Jane Austen May Have Died From Tuberculosis - Not Addison's Disease [Daily Mail]

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<![CDATA[Baby Talk]]> Although it's now recognized that the body can in rare cases hold the products of abdominal pregnancy and "parasitic twins," in the 16th Century a "23-year-old baby" was the cause of wonder, fear, and debate. (No, that's Benjamin Button.) [NewScientist]

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<![CDATA[Steps Taken To Reduce Rate Of Stillbirths]]> Each year, more than 25,000 babies are stillborn in the U.S., and more than a third of the time, doctors have no idea why.

They do, however, know who is at risk. Black women suffer the most stillbirths, but women 35 and older are also at a much higher risk. Obesity, diabetes and high blood pressure are all contributing factors in the death of a newborn.

In response to the mystery still surrounding stillbirths, the American College of Obstetricians and Gynecologists is calling for doctors to perform more autopsies on stillborn babies. Unfortunately, this is a difficult thing for doctors to ask grieving parents. Even worse, insurance often will not pay for autopsies, so parents may be forced to spend up to $1,500. And in many cases, even an autopsy does not provide all the answers they need.

Doctors in the UK are also working to end stillbirths. The Stillbirth and Neonatal Death Society (Sands) estimates that in one year, nearly 6,500 babies in the UK die at an early stage a rate that has not dropped in the last decade. A survey done by Sands found that almost half of the 270 grieving parents (48%) did not feel that everything possible was done to save their baby's life. Over a third of the women said they felt they were rushed through appointments, and would have liked better antenatal care. In response to the high rates of stillbirths, and the reported frustration of bereaved parents, Sands is calling for more midwives, increased funding of antenatal and maternity care, and more research into the causes of death.

Call for autopsy to unravel tragedy of stillbirth [AP]
Research needed into causes of stillbirth, charity warns [Telegraph]
Stillbirth rate 'still too high' [BBC]
Our baby girl 'died in our arms' [BBC]
Doctors call for Autopsies to Understand Stillbirth [Babble]

Image via American Pregnancy Association

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<![CDATA[Mysterious Magenta Fibers Crawling Out Of Your Skin? You're Not Alone!]]> The only thing worse than a disease wherein mysterious microscopic fibers grow out of your arms and legs and cause unbearable itching is the creeping sensation of reading about one of those diseases. Which sort of explains, I think, why the medical community has long dismissed Morgellons disease as a mental illness. Morgellons sufferers get crazy rashes from which they believe they see fibers growing; the doctors see nothing, and the patients get crazier. They report coughing up bugs. They become dependent on cocaine to stay awake. Oh yeah, and almost all sufferers are women, which might be one of the reasons so many doctors have long passed it off as one big hysterical hallucination. But! One doctor finally decided to give it a look. "Send me your fibers!" he posted on a Morgellons website. And in they came. Box after box of identical fibers, all magenta and cobalt blue. He tested them against all 900 materials listed in an American textile database — nothing. He heated them to 700 degrees to determine their chemical makeup — nothing. He held a flourescent light over them. They glowed.

This story is, like, my worst nightmare, as someone who has consistently had all sorts of fun dreams such as the one where I wake up with tiny sets of teeth embedded in my skin...Of course, it's hard to say what's worse: tiny sets of teeth embedded in your skin? Or the constant, ever-present sensation that they are sprouting?

But Morgellon's is actually a real thing caused by agrobacteria, which is a sort of bacteria that has long caused tumors in trees. Now agrobacteria have figured out how to implant their DNA in human cells. Maybe. Well, no one is sure, because no one has money to study the DNA of this shit. Mutant worms may be involved. It's sort of like the new bipolar disorder, combined with the new Lyme disease?

In the meantime, most doctors maintain it's all bullshit.

The writer of the story is giving an online chat on the Washington Post website in two hours, so maybe check in over there and report back. And now, excuse me while I spend the next twenty minutes rabidly scratching my scalp.


Figments of the Imagination? [Washington Post]
Related: New Study of the Bizarre Disease Where Wires Grow Out Of Your Skin [io9]

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