I'm going to talk to my doctor about this when I go in for my new prescription, or when I call to make the appointment. I've tested positive for HPV (before 21, actually) and got a biopsy on it but it ended up clearing up on its own. If I didn't go in yearly I probably wouldn't have found out at all. Whether that's good or bad I don't know.
And yeah, I had my first pap smear before becoming sexually active because I wanted to regulate my periods and I was getting more serious with my then-bf and wanted to be safe.
@Blueberry26: Your story is pretty much identical to not only mine, but to a number of women here on Jez (and women that I know IRL).
The trick is the guidelines still provide for women to go in every other year between the ages of 21 and 30, unless they have prior abnormal results or other issues. The thinking behind a lot of this is that biopsies (and other invasive procedures) are overused by practitioners because they guidelines tell them that the proper follow up is a colpo, LEEP, etc. (depending on your Pap results). So practioners often order them up when, really, things would clear up on their own.
ACOG would answer the last sentiment in your first paragraph as: well, never finding it because it cleared up on its own is better. No biopsy, no invasive procedures.
Treating abnormal PAPS, which can often clear themselves, can make pregnancy more dangerous (ex. LEEP removes some of the cervix which holds the baby in the uterus).
Americans usually think more=better but other countries, especially Canada focus more on procedures that are most effective. These recommendations are a step in that direction.
@UpUpAndAway: Yes. I agree. Invasive procedures are totally overused (see, this entire commenting thread of women that were told they had cancer, got biopsies, turned out it was okay, and the HPV cleared itself up).
I think this is a measured approach reflecting scientific research which will, in theory, reduce the number of these kinds of procedures that women go through.
Having a yearly pap, even more often when I was sexually often with multiple partners, has never done me wrong and I think I'll continue doing it, because it makes sense to me. I had a whole lotta sex when I was younger and I want to stay on top of things in case I picked up a quiet strain of HPV in my heyday. I don't need a task force to tell me what's the right thing to do with my vag.
@Beets.Go.On is the Fat Yogini: I'm with you on that. I've had very few partners, and I've had the HPV vaccine, but in my mind, extra screening still can't be a bad thing. Maybe I'm neurotic about my health, maybe I'm paranoid about what the government is trying to do, but I will happily submit my cervix to an annual scraping.
Beneficial as screening can be, using birth control as a carrot to lure women into the stirrups is a little paternalistic, and reflects an approach to women's health in which the women themselves don't have much power.
I agree with this so much. I'm 24 years old, never had sex, and on birth control because my uterus once tried to bleed me to death when I was 19. I hate that I'm forced to go through what is for me an incredibly comfortable (at best) test that I have absolutely zero reason to take.
Usually my doctors say "oh, well just in case." Yeah, just in case I'm lying. Thanks, guys.
@jianna: I agree! I find it really disturbing that so many gynos and doctors insist on internal exams before birth control. There's almost no medical reason to do this. Luckily my midwife/holistic gyno felt the same way, but virtually all of my friends have had to go through an exam before they could get the Pill. It's why I won't transfer my prescription to my college health center...
@WaltzingMatilda: Sooo are you talking about the newer form of HPV testing? I don't know a lot about that form, and this recommendation didn't talk about that I know of, but the pap smear is the traditional HPV test. I think I'm missing something.
The recommenders did talk about how the incidence of cervical cancer has been declining and even women who have the cancer-causing strain are still relatively unlikely to ever develop cervical cancer. I thought that was interesting, though I don't know if it answers your ?
@Blueberry26: Yup. There is a completely different test - often called the reflex test (even though not all practitioners order it up "reflexively")- that actually tests your sample for HPV after your Pap has been identified as being LSIL, HSIL, etc, etc. This test has gained a lot of support as being the true indicator of HPV - not a Pap.
Technically, a Pap is a screening of abnormal cells - not a test for HPV. While yes, HPV can cause your cells to become abnormal - so its effect would be reflected on a smear - I don't think that a cytotech will look at a smear and know that HPV specifically has caused it and what strain it is. They just aren't trained for that, I believe.
Cervical cancer is on the decline and I think a lot of experts would, in part, attribute it to the HPV reflex use - so women can be monitored and their abnormal results can be carefully monitored depending on the strain.
My gyno is awesome. She automatically tested my most recent pap for HPV (I found out when they called w/ results). She told me that my pap was abnormal slightly, but that since I did not test positive for HPV, that I should not worry because these slight abnormalities usually work themselves out. She recommended that I come back in a year. Cervical cancer runs in the family genetically and so does breast cancer.
I have friends who had abnormal paps and soon enough it was LEAP and biopsy time. All turned out just fine.
I fully admit that when I was a teenager, I wanted to go on hormonal birth control, but what stopped me was the pelvic exam. I have lots of issues surrounding that, and was just like... "nope, not gonna even try".
That was like, 8 years ago. I have had pelvics now, but I still won't go on hormonal birth control. I have never used it, and I don't plan to. Instead, I'm pushing for a tubal ligation, but they don't like to do that to people of my age.
I do medical studies, and I won't do one for hormonal birth control, despite the fact that they pay scads of money for them. My sister made $5000 off one of those. It was a hard study, though.
To me, the biggest problem I've had in gynelogical health is that the doctors don't listen to me. I've been having the same, disgusting problem for about 3.5 years now, and they still insist it's normal.
TMI ALERT WOOO WOOO
When you have thick, yellowy discharge leaking out of you that smells like rotting... something... kinda like sour milk, that's not normal.
I have been to 6 or 7 gynos who insist because it's not a yeast infection or bacterial vaginosis, it's fine. Never mind how it's affecting me, or what I think it might be, or that no one knows of anyone else who had these symptoms and it was normal, it's normal "for me". Oh, joy of joys!
Thanks, doctors, it's not like I didn't have a whole pile of issues with that area of my body before. Now I have a few more to pile on. It's hard to not hate a part of your body that is behaving so fucking disgustingly.
Okay, end rant. I wish that doctors would actually listen to patients. That would be fabulous.
I'm not sexually active and have never been (partially because of this issue and partially because I have issues), so the only ones they've tested me for are chlamydia and gonorrhea, which are standard for testing at my university. I asked them if I should get tested for anything else, and they said no, because I'm not sexually active.
Other doctors just don't believe me, but they don't give me tests, either.
The only thing they do is a wet mount, then send me on my way when it comes back negative. Each time they see the symptoms, they say something along the lines of, "Oh, yeah, that doesn't look normal." I had a pap smear at my university (thank god for that doctor, she was awesome, but she said she can't do anything other than what she did, and I respect that), which came back normal.
I've gone to talk to my primary care doctor and gotten a referral to get an ultrasound to try to figure out what it is. I'm wondering if it's leaky cysts or something?
@boxspelunker: "Quick-start" allows women to get a few months of pills without a PAP. My mom does them with the NM Department of Health, but I think you can also do it at planned parenthood.
As someone whose had a family history of cervical cancer, I call shenanigans. I know how quickly that can go from "everything looks normal" to "holy crap! Cancer!"
@wednesdayam: Yes, a thousand times yes! I will have Pap smears, ultrasounds, mammograms, etc, as often as insurance will allow me to because of the high rate of female cancers in my family. That little bit of reassurance every time a pap smear comes back normal is invaluable to me.
@suck_it_monkeys: With a family history like that, it might be worth plunking down the money to be tested for the BRCA1 and BRCA2 mutations. Your insurance may or may not cover the cost, but I say it's worth it for either peace of mind or the ability to start aggressive treatment early.
@suck_it_monkeys: A Pap smear does not detect all kinds of gynecological cancers - only cervical cancer and other cancers that have metastasized to the cervix. It is a common misconception that a Pap will detect ovarian cancer; except for cases where the OVCA has metastasized, it will not do so.
If you have not done so already, you may want to contact a group such as [www.facingourrisk.org] to help you understand and deal with the results of your test. Best of luck with it.
@l_d: I know that a Pap smear does not detect ovarian cancer, that's why I also mentioned ultrasounds. Cervical cancer runs in my family as well though. Thank you for the link. I'm doing the mandatory genetics counseling, but will take any additional info I can find.
@suck_it_monkeys: In my case (OVCA survivor), communicating with other survivors, both online and in person, was and continues to be extremely helpful - for both emotional support and information.
The FORCE site has links to support groups and a message board. Talking to others can help you overcome, or at least manage, your fear.
Also, another thing I'm seeing is concern that these recommendations are being made as cost-effectiveness measures. I am not sure why that is a bad thing. It seems to me that health care that is more targeted and specific to a person's actual needs would cost less than health care that is given simply because a person falls into an age range, with limited consideration given to other factors.
It would be one thing if it were just the bean counters pushing these recommendations, but scientists and health researchers are the ones putting them out there. The fact that it could ultimately save money is a bonus.
What I keep coming back to in this debate is the fact that women's health does not occupy a position of priority.
Given the paternalistic approach to medicine, it is not surprising that researchers are just now getting around to updating recommendations for mammography and pap smears.
I'm not exactly upset over this, either, and not because having cells scraped off my uterus is one of my least favorite things to do. I had a false positive once, but due to my loss of health insurance, I was not able to follow up on it for a couple of years. When I finally went back to get another pap, I was expecting to hear that my cervix was a squirming mess of precancerous tumors that were going to have be scraped out of me, but instead, it came back clear. Every one since then has come back clear.
I contrast this with what I saw while working at a women's health clinic. A woman with two abnormal paps in a row could expect to go through all sorts of fun procedures, starting with colpos and possibly including punch biopsies, cryocautery, LEEP cones and a mess of other fun things, all meant to make sure she doesn't develop cervical cancer. I wonder how much of that was necessary and how much was preventative. I also wonder how expensive that stuff all was.
And then there was the emotional toll such things took on the women, who believed they were just a step away from having cancer. A friend of mine, who had cryocautery done when she was 18, cried for days leading up to the procedure because she thought she was going to die from cancer. She ended up being fine, but whether or not that was due to the procedure, I don't know enough to say.
It's tough to say, because I am sure there are some women who were prevented from having cervical cancer as a result of all of these procedures, but I am also certain that there has got to be a better way to determine these things that doesn't involve putting lots of women through traumatic procedures that may ultimately be unnecessary.
@whynotshesaid: i also had a false positive. i was 19 and i remember crying hysterically in my planned parenthood while they scraped the inside of my cervix.
traumatic (and expensive) experience aside, it gave me a huge wake up call that i wasn't invincible and that i needed to be more cautious. and it would have been way more traumatic and expensive if i didn't go for regular screenings and came back with cervical cancer.
@whynotshesaid: the full story was that i went to some TERRIBLE gyno for consultation on bc methods and a week later he sent a letter to my house saying i had an abnormal result and need a colposcopy. the doctor refused to give me any information over the phone and at that point i was hundreds of miles away at college.
i made an appointment with the local planned parenthood and when i walked in the doctor said, "ok, you're here because you have HPV." i burst in to tears because even though i had googled it, i was not prepared at all to hear that!
then after he performed the test, it turned out that my body had already eliminated the virus, or i was misdiagnosed by the original doctor.
so i guess the point is that women need to be given more information about the procedures in advance and also be made aware of the possible meanings of test results, not just automatically say "Hey, you have a virus and it will probably turn in to cancer. Now spread your legs while I pour some salad dressing in your vagina and then cut pieces of your skin out."
@Ms. Take: I feel terrible that you shared your experience and then I laughed when I read the last sentence.
I think your point is so right on, that doctors need to do a better job of accurately conveying what is going on with something, rather than trying to scare the crap out of women in hopes of making them take things seriously. It reeks of paternalism, like you can't possibly handle the nuance of the situation so I'm just going to tell you that your ladyflower will rot from the inside out if you don't do as I tell you.
I said this in a previous post but I'm going to say it again. People, no one is trying to kill you or mess with your health insurance.
The problem is that they spent years trying to convince you to do certain tests to prevent cancer when actually they had little to no evidence that the tests actually worked. Because the breast cancer prevention juggernaut is so effective, they convinced everybody.
Turns out they were wrong. It is called science. And unfortunately, doctors don't use it very much. Just ask your parents about all the things they told them to do to prevent SIDS 20 years ago. First babies had to sleep on their stomachs, which is actually far more dangerous. Then their sides. It's only now that they know to do backs. And for a long time no one believed them when they were told to switch because they'd been indoctrinated with something else. It's the same thing here and until doctors actually practice evidence-based medicine, this kind of thing will just keep happening.
@jleigh: It's true - science is debunking the effectiveness of Pap smears (which never were really accurate to begin with, to be honest). And this is not new - it has been in a slow build for some time. BUT - that was because HPV research was the catalyst. They don't talk much about HPV tests in this latest iteration of guidelines. That is the weird part.
@jleigh: Agreed. One thing I'm thinking about is hormone replacement therapy, how that was something that women were just expected to do once they went through menopause. And now we are finding out that, whoops!, it increases in your chance of developing cancer.
Our understanding of these things evolves over time. I'd be MORE alarmed if they never changed.
just thinking about all the things that women could do when they were pregnant as little as 30 years ago is proof that true evidence-based medicine is rarely practiced because fear-mongering-based medicine is far more profitable.
11/20/09
And yeah, I had my first pap smear before becoming sexually active because I wanted to regulate my periods and I was getting more serious with my then-bf and wanted to be safe.
11/20/09
The trick is the guidelines still provide for women to go in every other year between the ages of 21 and 30, unless they have prior abnormal results or other issues. The thinking behind a lot of this is that biopsies (and other invasive procedures) are overused by practitioners because they guidelines tell them that the proper follow up is a colpo, LEEP, etc. (depending on your Pap results). So practioners often order them up when, really, things would clear up on their own.
ACOG would answer the last sentiment in your first paragraph as: well, never finding it because it cleared up on its own is better. No biopsy, no invasive procedures.
11/20/09
Americans usually think more=better but other countries, especially Canada focus more on procedures that are most effective. These recommendations are a step in that direction.
11/20/09
I think this is a measured approach reflecting scientific research which will, in theory, reduce the number of these kinds of procedures that women go through.
11/20/09
11/20/09
11/20/09
I agree with this so much. I'm 24 years old, never had sex, and on birth control because my uterus once tried to bleed me to death when I was 19. I hate that I'm forced to go through what is for me an incredibly comfortable (at best) test that I have absolutely zero reason to take.
Usually my doctors say "oh, well just in case." Yeah, just in case I'm lying. Thanks, guys.
11/20/09
11/20/09
11/20/09
11/20/09
Seems reasonable, contains exceptions based upon previous history, some issues are a little sticky, but ok.
That being said - I stick by my - "what? No HPV testing in between?"
If anyone has a full copy of the guidelines and can let us know how HPV testing is discussed, that would be marvelous.
11/20/09
The recommenders did talk about how the incidence of cervical cancer has been declining and even women who have the cancer-causing strain are still relatively unlikely to ever develop cervical cancer. I thought that was interesting, though I don't know if it answers your ?
11/20/09
Technically, a Pap is a screening of abnormal cells - not a test for HPV. While yes, HPV can cause your cells to become abnormal - so its effect would be reflected on a smear - I don't think that a cytotech will look at a smear and know that HPV specifically has caused it and what strain it is. They just aren't trained for that, I believe.
Cervical cancer is on the decline and I think a lot of experts would, in part, attribute it to the HPV reflex use - so women can be monitored and their abnormal results can be carefully monitored depending on the strain.
11/20/09
I have friends who had abnormal paps and soon enough it was LEAP and biopsy time. All turned out just fine.
11/20/09
So glad to hear you have a good one!
11/20/09
That was like, 8 years ago. I have had pelvics now, but I still won't go on hormonal birth control. I have never used it, and I don't plan to. Instead, I'm pushing for a tubal ligation, but they don't like to do that to people of my age.
I do medical studies, and I won't do one for hormonal birth control, despite the fact that they pay scads of money for them. My sister made $5000 off one of those. It was a hard study, though.
To me, the biggest problem I've had in gynelogical health is that the doctors don't listen to me. I've been having the same, disgusting problem for about 3.5 years now, and they still insist it's normal.
TMI ALERT WOOO WOOO
When you have thick, yellowy discharge leaking out of you that smells like rotting... something... kinda like sour milk, that's not normal.
I have been to 6 or 7 gynos who insist because it's not a yeast infection or bacterial vaginosis, it's fine. Never mind how it's affecting me, or what I think it might be, or that no one knows of anyone else who had these symptoms and it was normal, it's normal "for me". Oh, joy of joys!
Thanks, doctors, it's not like I didn't have a whole pile of issues with that area of my body before. Now I have a few more to pile on. It's hard to not hate a part of your body that is behaving so fucking disgustingly.
Okay, end rant. I wish that doctors would actually listen to patients. That would be fabulous.
11/20/09
11/20/09
I'm not sexually active and have never been (partially because of this issue and partially because I have issues), so the only ones they've tested me for are chlamydia and gonorrhea, which are standard for testing at my university. I asked them if I should get tested for anything else, and they said no, because I'm not sexually active.
Other doctors just don't believe me, but they don't give me tests, either.
The only thing they do is a wet mount, then send me on my way when it comes back negative. Each time they see the symptoms, they say something along the lines of, "Oh, yeah, that doesn't look normal." I had a pap smear at my university (thank god for that doctor, she was awesome, but she said she can't do anything other than what she did, and I respect that), which came back normal.
I've gone to talk to my primary care doctor and gotten a referral to get an ultrasound to try to figure out what it is. I'm wondering if it's leaky cysts or something?
#tips
11/20/09
11/20/09
11/20/09
#tips
11/20/09
11/20/09
11/20/09
[www.cancer.gov]
11/20/09
11/20/09
If you have not done so already, you may want to contact a group such as [www.facingourrisk.org] to help you understand and deal with the results of your test. Best of luck with it.
11/20/09
11/20/09
The FORCE site has links to support groups and a message board. Talking to others can help you overcome, or at least manage, your fear.
11/20/09
The American Society for Colposcopy and Cervical Pathology website has some info that relates to questions raised here.
11/20/09
It would be one thing if it were just the bean counters pushing these recommendations, but scientists and health researchers are the ones putting them out there. The fact that it could ultimately save money is a bonus.
11/20/09
Given the paternalistic approach to medicine, it is not surprising that researchers are just now getting around to updating recommendations for mammography and pap smears.
11/20/09
I contrast this with what I saw while working at a women's health clinic. A woman with two abnormal paps in a row could expect to go through all sorts of fun procedures, starting with colpos and possibly including punch biopsies, cryocautery, LEEP cones and a mess of other fun things, all meant to make sure she doesn't develop cervical cancer. I wonder how much of that was necessary and how much was preventative. I also wonder how expensive that stuff all was.
And then there was the emotional toll such things took on the women, who believed they were just a step away from having cancer. A friend of mine, who had cryocautery done when she was 18, cried for days leading up to the procedure because she thought she was going to die from cancer. She ended up being fine, but whether or not that was due to the procedure, I don't know enough to say.
It's tough to say, because I am sure there are some women who were prevented from having cervical cancer as a result of all of these procedures, but I am also certain that there has got to be a better way to determine these things that doesn't involve putting lots of women through traumatic procedures that may ultimately be unnecessary.
11/20/09
11/20/09
traumatic (and expensive) experience aside, it gave me a huge wake up call that i wasn't invincible and that i needed to be more cautious. and it would have been way more traumatic and expensive if i didn't go for regular screenings and came back with cervical cancer.
11/20/09
Just out of curiosity, did you just have one abnormal pap before they scraped you?
11/20/09
i made an appointment with the local planned parenthood and when i walked in the doctor said, "ok, you're here because you have HPV." i burst in to tears because even though i had googled it, i was not prepared at all to hear that!
then after he performed the test, it turned out that my body had already eliminated the virus, or i was misdiagnosed by the original doctor.
so i guess the point is that women need to be given more information about the procedures in advance and also be made aware of the possible meanings of test results, not just automatically say "Hey, you have a virus and it will probably turn in to cancer. Now spread your legs while I pour some salad dressing in your vagina and then cut pieces of your skin out."
11/21/09
I think your point is so right on, that doctors need to do a better job of accurately conveying what is going on with something, rather than trying to scare the crap out of women in hopes of making them take things seriously. It reeks of paternalism, like you can't possibly handle the nuance of the situation so I'm just going to tell you that your ladyflower will rot from the inside out if you don't do as I tell you.
11/20/09
The problem is that they spent years trying to convince you to do certain tests to prevent cancer when actually they had little to no evidence that the tests actually worked. Because the breast cancer prevention juggernaut is so effective, they convinced everybody.
Turns out they were wrong. It is called science. And unfortunately, doctors don't use it very much. Just ask your parents about all the things they told them to do to prevent SIDS 20 years ago. First babies had to sleep on their stomachs, which is actually far more dangerous. Then their sides. It's only now that they know to do backs. And for a long time no one believed them when they were told to switch because they'd been indoctrinated with something else. It's the same thing here and until doctors actually practice evidence-based medicine, this kind of thing will just keep happening.
11/20/09
11/20/09
Our understanding of these things evolves over time. I'd be MORE alarmed if they never changed.
11/20/09
just thinking about all the things that women could do when they were pregnant as little as 30 years ago is proof that true evidence-based medicine is rarely practiced because fear-mongering-based medicine is far more profitable.