Interesting, because Scientific American just published an article about a study that showed people who can't decipher the facial expression of fear are more likely to be psychopaths!
The author noted that the people who can't recognize fear are actually different from people with autism, who have difficult recognizing ALL types of emotions on other peoples' faces.
Aren't more men pscyhopaths than women? Or, at least we hear about more male serial killers than women? Not that all killers are pscyhopaths, but maybe this would help explain why men kill more than women do? #emotions
Men do extremely stupid things , sometimes while sober. I am not an exception to this mind you. Also yeah, guys have a tolerance for gross stuff , judging by my dorms' bathroom. #emotions
I think a lot of this is an evolutionary trait; more specifically, maternal instincts. Identifying the emotions that a baby/child is experiencing was long the sole responsibility of women. #emotions
The ability to distinguish between the two might have something to do with how often the genders experience each?
A few years ago, it was brought to my attention that most men, while they understand that women experience fear walking alone at night or in a parking garage, don't really "get" it. As in, they don't know what it is to feel fear in an everyday situation. It's not for lack of compassion, it's simply something they don't have to feel. So perhaps this has something to do with their own abilities to detect fear in others.
@lobsterswithmittens: That was my first thought. Women have to deal with the possibility and the actuality of rape and violence from men. We live with fear in a way that they just don't. #emotions
@lobsterswithmittens: That was my first thought too. I've often had conversations with my boyfriend about fear, how often he feels it, what he's afraid of, etc. He's laughed at me when I tell him all the cautionary measures I take (like, checking the backseat of my car before I get in it and always having my keys at the ready in case I need a weapon). Most men, unless they come from a position of disadvantage (i.e. I imagine minority men or gay men might experience more everyday fear than white, straight men) just don't feel afraid very often. And certainly not every day. I feel some fear or apprehension every time I leave the house. And sometimes when I'm in my house! #emotions
@TurtleSpeak: Actually, I read somewhere that men are at a higher risk than women at being assaulted. Not sexually, no, but just in general. I don't know, maybe I'm just not smart enough to be scared, but I'm pretty much never scared leaving my house. Am I the only one? #emotions
@Sadako: Well it's drilled into women that they have to be on guard at all times, it's everywhere. Men don't get such strong messages that tell them they are weak and vulnerable, in general men are told that they are strong and capable. Men also don't experience things like catcalls and street harassment, which remind them on a regular basis of their vulnerability.
Besides which the statistics- men being physically assaulted more- don't actually tell us much about... well, anything. I'm interested in where you got the stat from, if you can point me to the study I'd like to see more info.
I'm afraid when I'm out and about (and sometimes when I'm not) partially because of my life experiences, and the experiences of the other women in my life, which I won't get into, but it's been clear to me from a young age that I'm subject to a particular kind of violence because of my gender. If you've been blessed with feeling you have no reason to fear, then I envy you. My fear isn't debilitating but I could do without it. #emotions
@Sadako: I think the sexual component of assault is what makes it more frightening. Yes, being beaten up would absolutely be traumatic and painful, but sex is such a personal part of someone's life - being raped is having something forcibly made public that should never have to be public. I mean, hell, I feel gross after any particularly nasty come-ons or catcalls. And while I can't be sure whether or not this is media spin, I'd say we hear about women being abducted/raped/killed (or some iteration therein) WAY more than men. #emotions
@lobsterswithmittens: I haven't been able to find a study about men being at greater risk yet, though I'm pretty sure I've read it before.
We definitely hear about the rapes/abductions/killings. But in reality, crime is fairly low and most people don't have those things happen to them. In fact, women are at the greatest risk from people they know--their boyfriends, husbands, friends, acquaintances. I think that a lot of times we get afraid of the unknown, the dark, strangers--but that fear is pretty unfounded for the most part. #emotions
@Sadako: I don't think it's unfounded at all.
I know MANY women who have been raped, both by strangers and people they knew. I'm sure I know more women who have been raped by never told me about it, as well.
I also hear in the news, in my city at least, all the time (every day) about women being assaulted by a stranger in the street, or a warning from the police that they have to release this violent sex offender onto the streets and they are worried he will commit the crime again (they often/usually do). It's become a running joke between me and my mother because all the time there are photos of these men in the paper that women (specifically women) are supposed to look out for because they have a history of breaking into women's homes at night and raping them, or for raping them on the street, and we joke that we'll never remember all of their faces, so what's the point of even releasing the photo? Also, at the place I go to school there have been attacks on women at night who are alone by strange men (who haven't been caught). The stats on women being raped are something like, what, 1 in 4? Depending where you look, could be more, or less, but still a sizable chunk of the female population.
Given all this (and my past experiences and the past experiences of the other women in my life)- how exactly is my fear unfounded? Just because the statistics say my boyfriend is more likely to rape me, that doesn't make it "reality"- it's just a stat. Stats do not tell the whole story.
I have felt and been threatened by strange men in the middle of the day. The threat of assault is a constant cloud over my head if I am out on my own, because I am very aware that it happens a lot. Also, I have had very disconcerting encounters with men where I wasn't sure exactly how much I was at risk. Men have purposefully intimidated me (often in groups) out in public, making me very conscious of my very REAL vulnerability to them.
Where ever you live that these things don't happen to you, I would like to move there. #emotions
@TurtleSpeak: I live in Manhattan, FYI, and I feel really safe at all hours of day or night. Bad stuff does happen, yes, but mostly it's a safe place. I do think that rape and sexual assault are very serious crimes. However, statistically we are at a much greater risk from the men we know--boyfriends, husbands, friends, acquaintances, colleagues--than strangers on the street.
I think that a lot of the news reports aren't about presenting representative facts--but about scaring us. The 24/7 media ensures that every time someone gets kidnapped or murdered or raped, we hear about it. The world isn't any more dangerous than it was fifty years ago. It's just that we talk about sex crimes more (a good thing!) and that we hear about scary stories because of the Nancy Graces of the world.
I think that the whole 24/7 media reporting all this stuff is bad for women. It perpetuates the notion that we need to be constantly afraid, when in reality as long as we're all (male/female) mostly aware of our surroundings, then bad stuff probably won't happen. And if it does, it's more than likely not going to happen from a total stranger, but from someone that we know. #emotions
@Sadako: I think if you feel safe all the time it's due to the good fortune of never having a frightening experience. You look to statistics for information about these things; I look to my experiences. My experiences tell me that I'm not safe. I trust my experiences more than odds. #emotions
@TurtleSpeak: I actually have been sexually assaulted. But that's the exception, not the rule. I just think that relying on intuition doesn't really make any sense. I think a lot of people try to make us feel afraid when we really don't need to be. I mean, I'm not a particularly large or physically threatening looking person and I'm rarely afraid. I think if you're more or less careful about surroundings (which goes for men and women), then you'll be okay.
I guess I prefer to look at facts, not opinions or feelings, when deciding things. #emotions
@theysaidwhat: Oh man. Heavy. But yeah. I can see that. They're offended because they think you're being dismissive or looking down on them. Or not listening to what they're saying. "Don't look at me that way".
A lot of women in bad relationships over time stop showing as many emotions... maybe because they're misread... #emotions
I can only speak for myself and my son's experience with Asperger's - and his treatment involves social skills therapy, therapy for anxiety, being a Cub Scout ( BIG AMAZING WONDERFUL THING FOR HIM ), and playing soccer. We don't subscribe to changing his diet - his food choices are so limited, I would hate to add more stress into his life. We create oppurtunities for him to interact with peers, and talk talk talk about appropriate interactions.
When someone says " Hello ", it's best to say " Hello " back, and not to respond by reciting that various colors of light sabers found amongst the various Jedi nights.
@Megan Brady: You are doing exactly what people like myself and mashkitten seem to be criticizing that a lot of people don't do. In fact, a lot of adult people diagnosed with ASD are against the exact things you are doing, saying that you must not try to make people live up to NT (neurotypical) standards, and a lot of the time, excusing terrible behavior because "we are not capable of empathy". And what they do offends me more as someone on the ASD than how they're offended by what you and several other parents are doing - saying I am not capable of empathy makes me sound like a psychopath, not a person with autism.
I'm oblivious to tiny little offenses I've committed over the years, where people show their distaste with expressions (like when I, as a teenager, didn't understand that to people, saying "X is worse than Y" implies both are bad, and isn't a synonym with "Y is better than X"), but I certainly *care* that I offended people, and want to avoid it in the future. If anything, I care more than the average person, cause I keep an exhausting mental log of all the ways I've offended people since childhood, to make sure I don't do them again.
@Jan74: I know that people on the spectrum have deep deep emotions - and have different and unique ways of expressing them. I get the sense that people confuse lack of empathy with a lack of understanding of motivation. My husband and I just want our son to be able to function in a world that is populated by NT's. He recieved occupational therapy so he could hold a pencil and write - why shouldn't he get help with social skills - We want him to be happy with who he is. And he makes me proud everyday. ( I tell him that every night - and he mumbles " I love you Mom ".)
As much as I understand the diagnosis of Asperger's, I can't help but feel insulted by it. I took a questionnaire the one time and answered true to a good percentage of the questions. Many of the questions were directed towards how you interacted with others and situations. Many questions more dealt with if I had smaller, closer groups of friends rather than larger group of not-so close friends. So I don't react that same as Nancy or have a plethora of friends like Suzy, so that makes me have a disorder or weird? I feel at times that the diagnosis is a cop out to call someone non-human for not being the same.
My brother was diagnosed with Asperger's at 27. The diagnosis has not only stopped my mom from helping my brother get over his fears, she actually babies any and all bad behavior he does (such as throwing a fit because we are eating something he doesn't want to or getting verbally, not yet physically, violent when we do something he doesn't like) and says it's his disorder and there is nothing that can be done.
I hear about those getting treatment and being re-socialized but I only often see the erratic behaviour not being treated or "Oh, it's the Asperger's, nothing we can do." I have met those who are diagnosed as with it who have perfectly normal social lives.
I have nothing against the diagnosis, just why it is diagnosed and often times how it is (not) treated.
I know the plural of anecdote isn't data, but I have to say that if someone called my mother for this poll, she would have answered yes to both questions, despite the fact that me, my sister, my husband and almost everyone else who knows my little brother believes he is just a pain in the ass and not truly autistic. Mom has diagnosis-shopped him since he was about five years old, and quit once she got an autism diagnosis when he was about 17. Now she writes off all of his troubles as side effects of his "disability," and he works it to his advantage, using it to get away with living in her basement, smoking pot and playing video games all day long.
I realize that many people truly are on the spectrum, but I have never seen such a blatant case of misdiagnosis in my entire life.
This subject always makes me think of two things - first, that we shouldn't be so quick to slap such specific labels on children without weighing the benefits versus the potential problems. Diagnosis can definitely help with treatment, but many parents are desperate for answers and may accept a diagnosis that doesn't really fit. Even if the diagnosis is proper, putting too much weight on it can be bad for kids, simply because it can lead them to believe things about themselves that may or may not be true in their case (i.e. people with asperger's never work, never have romantic relationships, never find a happy place in society, that kind of thing).
Second, that it would be interesting if the concern about "what we'll do" with autism spectrum kids as they age actually led to an examination of adults who currently fit the diagnostic criteria or would have as children (a much larger group than we think, I suspect). This is a largely ignored group, but vital to determining what kinds of services actually help adults with autism spectrum disorders thrive.
I think one of the reasons of increased diagnosis is because they've expanded what autism is. Years ago, people with Asperger's were just considered "awkward," or were diagnosed with other disorders (e.g. ADHD).
@PetiteGal: I've wondered that as well. I've run into several older men in my business that seemed to have Asperger's. Instead, they're just considered a bit strange. I wonder what a diagnosis would have meant to them. I honestly don't know if it would have been a positive or negative.
@jebash: You are both absolutely right. I was just "weird" growing up in the 70s - autists didn't speak and were boys, so I couldn't possibly be one of them, I was just antisocial and strange.
I was accidentally diagnosed as Asperger's at 28 years old, when I drove a friend and her 4 year old boy to an autism specialist, and he asked that we normal people take his autism diagnosis questionnaire alongside with her answers for him. He scored 32 out of 111, and he is now at 8 a non-verbal, severe autist; I scored 87 out of 111, which was the second highest score the doctor had ever seen.
It was freeing though, to realize that my lack of coordination and feelings of being overwhelmed with too much sensory input had an explanation, but I wonder if I'd been given the diagnosis at a young age, like a 20-year-old acquaintance was, if I'd be different - he was homeschooled and basically told he'd never work or date so he lives up to those expectations, whereas I was expected to go to a regular school and check my latest obsession to do homework, chores, and show up for work, and to swim since I wasn't coordinated enough to play volleyball, and other things like that. I wonder if for high-functioning ASD and Asperger's people, an early diagnosis with the low expectations that usually go with it isn't shortchanging them.
My personal opinion (full disclosure: I am not a doctor!) is that, while there may be environmental factors, at least part of the reason for the rise in autistic spectrum disorders is that more people with autism are having children. Autism used to be a diagonal disorder - it was something that your crazy aunt or uncle had, which prevented them from living normally in society, marrying, and having children. But now with the rise in technical and computer jobs, where no one cares if you wear the same shirt for two weeks as long as your code is good, more people with these disorders are meeting, falling in love, and having children, who may inherit the disorders.
@silver1881: Yup, I read a NYT Magazine article to this effect a few years ago-- basically, in Silicon Valley lots of folks with autism spectrum disorders are meeting each other, marrying, and reproducing. None of whom in the past would have had any hope of any of these things...
@silver1881: You are likely very right. Autism is now being used as the primary or co-primary diagnosis with intellectual disabilities, while a half a century ago most of these children and adults would have been labelled 'retarded', or possibly schizophrenic. Adults and children like myself, on the mild end of the spectrum, were labelled 'eccentric' and 'odd' but had no real helpful labels to access services we may need. We may have been diagnosed with a learning disorder (because of sensory, especially auditory processing, difficulties), or if quite talented in an area, be called a prodigy.
My son has been diagnosed with autism, and there is no evidence that his disorder is genetic. There is no history of autism in my family. There is no history of autism in my husband's family. My son, like many other children diagnosed with autism, is considered to be "high-functioning". This term simply means that his IQ is average or above-average. So, no, he didn't receive the diagnosis rather than a diagnosis of mental retardation. He's quite bright, as are the other children on the spectrum that I have met.
I do think that the threshold for diagnosing is growing ever lower/more sensitive, and that is one factor for the increase in diagnoses. However, I also think that something has changed in the environment that is triggering more cases of autism. I do not know what that is. I don't think it is vaccines.
This is a very frustrating disorder to deal with, as there is no definitive way to diagnose it, no clear-cut treatments, and insurance companies deny benefits with impunity.
@silver1881: My parents are not autistic, and I am. And they weren't older when I was born either, my mother was 19, so at the peak of her reproductive health (that one is for the person up there who said that older mothers = autistic children).
So none of these theories are right, it is just more diagnosis. Only severely non-verbal autists were called autists in the 70s, and now everyone on the spectrum gets diagnosed.
Jenny McCarthy enrages me on @ 100 levels. Her observations and ideas about autism and "curing " autism are nothing more than the verbal diarreha of a privileged person with no connection to how real people live. My son has Asperger's Syndrome, and one of the therapies that he participates in is Social Skills Therapy. A group of kids with ASD's meet weekly and learn accepted social interactions. ( They live in "our" world ) One of the moms was WEEPING because of an article in People about Ms. McCarthy, and all that she has done to " cure " her son. This mom was weeping because her twins with autism with never be
" cured " and that she and her husband are " bad " parents because they don't home school , shop at Whole Foods, and can't afford the alternative therapies that Ms. McCarthys son gets. That broke my heart. Here is a mom doing the best that she can - being made to feel like a " bad mom " because of people like McCarthy. ( off my Soap Box now )
@Megan Brady: Give that mom (and yourself) a big hug for me! Please know that many of us don't feel the same way that Jenny McCarthy does. It's frustrating how people can misapply and conflate things. The fact that the two of you bring your kids to this weekly meet shows just how much you both care about your children and are doing the best you can.
If autism really is growing more prevalent, we need to figure out if any environmental factors are contributing to this growth.
I'm going to blame high fructose corn syrup. Because it's convenient for me and my distaste for the sheer number of products that use it. I admit to having no scientific basis to blame it, I just don't like the junk.
But truthfully, is it really becoming more widespread, or is there just more awareness of the autism spectrum? Or possibly diagnosis-happy parents and docs (as we experienced with a lot of false ADD kids in the 90s and early 00s)? Genetic testing will be great to have and I certainly hope they get it down pat relatively soon.
@wednesdayam: I agree, but for different reasons. I think autism is diagnosed more nowdays, but I'm not sure it's a lot of false diagnoses, but the fact that autism was considered under the umbrella of mental retardation before, and now we know that there are a lot of different disorders that cause learning disabilities.
I also think it's compounded by the fact that in our lifetimes we have to encounter so many more strangers and have more advanced social skills. I can see how an autistic child would just be kept at home 100 years ago and considered "funny" but without something "medically" wrong with him. It's the nature of modern society that any kind of unusual behavior must have a disease behind it and be dealt with accordingly.
@Lymed: There are even some of us on Jez. With stars and everything.
The spectrum means that people like me--a bit odd, a bit obsessive, socially inept--are autistic, along with people like my patients at work, who may be nonverbal and not completely toilet trained at 10, or 15.
@Lymed: It does seem as though with a spectrum-model disease, there may be a lot of room for people on both ends of the spectrum. For example, what constitutes the "mildest" diagnosable case on the spectrum? Is it possible that the behaviors in that case could be attributed to something else, like say, a painfully shy child? In cases where autism presents along with other problems, is it possible that it's not actually autism but simply similar behaviors caused as a side-effects of the something else?
I don't know nearly enough about autism to have an opinion on those questions, but they seem like potential reasons why thinking about autism with a spectrum model might give a lot of false positives. It is probably the best way to approach it - but it still may have this problem.
@ladyfalcon is skin deep: But is the diagnosis of Autism the diagnosis of a specific condition or the diagnosis of a group of symptoms? Asperger's is a syndrome. A syndrome is generally given to a group of symptoms often that have no known cause. If Autism is also a syndrome, then whether somebody's symptoms are a result of a different known condition or not, the person still has Autism if they have that group of symptoms.
@Her Grace: I would be shocked if there weren't any people with Autism on Jez.
@Her Grace: I also think that alot of people have some symptoms of autism that are dianosed without being diabilitated by them. My Mother (who is a teacher with 35 years of experience teaching people with learning difficulties) believes that I am borderline autistic because I have situation specific OCD, can't deal with certain sounds or visual stimulation but I have no problems with social situations or anything like that.
@Lymed: Wiki defines it as a 'disorder of neural development', which seems to imply that it isn't a syndrome (and I had never heard that clinical definition of what a syndrome actually is, so thanks for that!). It goes on to note that the third diagnosis on the autism spectrum is something called PDD-NOS, which is "diagnosed when full criteria for the other two disorders are not met," which seems to mean that there's a lot of room for catch-alling with this diagnosis.
"Also, 40% of parents who answered yes to the first question said no to the second, which is odd because autism spectrum disorders are considered incurable."
That's a reason why this methodology is not a good one, but that defect would cause an underestimation of how many are affected, so it would not explain the increase, only point to this increase being even bigger.
@Dirk Anger: Not necessarily. They could have said yes to the first question because a doctor made the diagnosis but further opinions by other doctors did not agree.
10/22/09
[www.scientificamerican.com]
The author noted that the people who can't recognize fear are actually different from people with autism, who have difficult recognizing ALL types of emotions on other peoples' faces.
Aren't more men pscyhopaths than women? Or, at least we hear about more male serial killers than women? Not that all killers are pscyhopaths, but maybe this would help explain why men kill more than women do? #emotions
10/21/09
But yeah I second what lobsterswithmittens said; it's probably because women are afraid more often than men. #emotions
10/21/09
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10/21/09
A few years ago, it was brought to my attention that most men, while they understand that women experience fear walking alone at night or in a parking garage, don't really "get" it. As in, they don't know what it is to feel fear in an everyday situation. It's not for lack of compassion, it's simply something they don't have to feel. So perhaps this has something to do with their own abilities to detect fear in others.
10/21/09
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10/22/09
Besides which the statistics- men being physically assaulted more- don't actually tell us much about... well, anything. I'm interested in where you got the stat from, if you can point me to the study I'd like to see more info.
I'm afraid when I'm out and about (and sometimes when I'm not) partially because of my life experiences, and the experiences of the other women in my life, which I won't get into, but it's been clear to me from a young age that I'm subject to a particular kind of violence because of my gender. If you've been blessed with feeling you have no reason to fear, then I envy you. My fear isn't debilitating but I could do without it. #emotions
10/22/09
10/22/09
We definitely hear about the rapes/abductions/killings. But in reality, crime is fairly low and most people don't have those things happen to them. In fact, women are at the greatest risk from people they know--their boyfriends, husbands, friends, acquaintances. I think that a lot of times we get afraid of the unknown, the dark, strangers--but that fear is pretty unfounded for the most part. #emotions
10/22/09
I know MANY women who have been raped, both by strangers and people they knew. I'm sure I know more women who have been raped by never told me about it, as well.
I also hear in the news, in my city at least, all the time (every day) about women being assaulted by a stranger in the street, or a warning from the police that they have to release this violent sex offender onto the streets and they are worried he will commit the crime again (they often/usually do). It's become a running joke between me and my mother because all the time there are photos of these men in the paper that women (specifically women) are supposed to look out for because they have a history of breaking into women's homes at night and raping them, or for raping them on the street, and we joke that we'll never remember all of their faces, so what's the point of even releasing the photo? Also, at the place I go to school there have been attacks on women at night who are alone by strange men (who haven't been caught). The stats on women being raped are something like, what, 1 in 4? Depending where you look, could be more, or less, but still a sizable chunk of the female population.
Given all this (and my past experiences and the past experiences of the other women in my life)- how exactly is my fear unfounded? Just because the statistics say my boyfriend is more likely to rape me, that doesn't make it "reality"- it's just a stat. Stats do not tell the whole story.
I have felt and been threatened by strange men in the middle of the day. The threat of assault is a constant cloud over my head if I am out on my own, because I am very aware that it happens a lot. Also, I have had very disconcerting encounters with men where I wasn't sure exactly how much I was at risk. Men have purposefully intimidated me (often in groups) out in public, making me very conscious of my very REAL vulnerability to them.
Where ever you live that these things don't happen to you, I would like to move there. #emotions
10/22/09
I think that a lot of the news reports aren't about presenting representative facts--but about scaring us. The 24/7 media ensures that every time someone gets kidnapped or murdered or raped, we hear about it. The world isn't any more dangerous than it was fifty years ago. It's just that we talk about sex crimes more (a good thing!) and that we hear about scary stories because of the Nancy Graces of the world.
I think that the whole 24/7 media reporting all this stuff is bad for women. It perpetuates the notion that we need to be constantly afraid, when in reality as long as we're all (male/female) mostly aware of our surroundings, then bad stuff probably won't happen. And if it does, it's more than likely not going to happen from a total stranger, but from someone that we know. #emotions
10/23/09
10/23/09
I guess I prefer to look at facts, not opinions or feelings, when deciding things. #emotions
10/21/09
10/21/09
A lot of women in bad relationships over time stop showing as many emotions... maybe because they're misread... #emotions
10/21/09
10/22/09
10/05/09
When someone says " Hello ", it's best to say " Hello " back, and not to respond by reciting that various colors of light sabers found amongst the various Jedi nights.
10/05/09
10/05/09
I'm oblivious to tiny little offenses I've committed over the years, where people show their distaste with expressions (like when I, as a teenager, didn't understand that to people, saying "X is worse than Y" implies both are bad, and isn't a synonym with "Y is better than X"), but I certainly *care* that I offended people, and want to avoid it in the future. If anything, I care more than the average person, cause I keep an exhausting mental log of all the ways I've offended people since childhood, to make sure I don't do them again.
10/05/09
10/06/09
10/05/09
My brother was diagnosed with Asperger's at 27. The diagnosis has not only stopped my mom from helping my brother get over his fears, she actually babies any and all bad behavior he does (such as throwing a fit because we are eating something he doesn't want to or getting verbally, not yet physically, violent when we do something he doesn't like) and says it's his disorder and there is nothing that can be done.
I hear about those getting treatment and being re-socialized but I only often see the erratic behaviour not being treated or "Oh, it's the Asperger's, nothing we can do." I have met those who are diagnosed as with it who have perfectly normal social lives.
I have nothing against the diagnosis, just why it is diagnosed and often times how it is (not) treated.
10/05/09
I realize that many people truly are on the spectrum, but I have never seen such a blatant case of misdiagnosis in my entire life.
10/05/09
Second, that it would be interesting if the concern about "what we'll do" with autism spectrum kids as they age actually led to an examination of adults who currently fit the diagnostic criteria or would have as children (a much larger group than we think, I suspect). This is a largely ignored group, but vital to determining what kinds of services actually help adults with autism spectrum disorders thrive.
10/05/09
10/05/09
10/05/09
I was accidentally diagnosed as Asperger's at 28 years old, when I drove a friend and her 4 year old boy to an autism specialist, and he asked that we normal people take his autism diagnosis questionnaire alongside with her answers for him. He scored 32 out of 111, and he is now at 8 a non-verbal, severe autist; I scored 87 out of 111, which was the second highest score the doctor had ever seen.
It was freeing though, to realize that my lack of coordination and feelings of being overwhelmed with too much sensory input had an explanation, but I wonder if I'd been given the diagnosis at a young age, like a 20-year-old acquaintance was, if I'd be different - he was homeschooled and basically told he'd never work or date so he lives up to those expectations, whereas I was expected to go to a regular school and check my latest obsession to do homework, chores, and show up for work, and to swim since I wasn't coordinated enough to play volleyball, and other things like that. I wonder if for high-functioning ASD and Asperger's people, an early diagnosis with the low expectations that usually go with it isn't shortchanging them.
10/05/09
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10/05/09
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10/05/09
Sorry, autism is (ha, irony) one of my special interests, as an autistic person (Asperger's being my diagnosis).
10/05/09
My son has been diagnosed with autism, and there is no evidence that his disorder is genetic. There is no history of autism in my family. There is no history of autism in my husband's family. My son, like many other children diagnosed with autism, is considered to be "high-functioning". This term simply means that his IQ is average or above-average. So, no, he didn't receive the diagnosis rather than a diagnosis of mental retardation. He's quite bright, as are the other children on the spectrum that I have met.
I do think that the threshold for diagnosing is growing ever lower/more sensitive, and that is one factor for the increase in diagnoses. However, I also think that something has changed in the environment that is triggering more cases of autism. I do not know what that is. I don't think it is vaccines.
This is a very frustrating disorder to deal with, as there is no definitive way to diagnose it, no clear-cut treatments, and insurance companies deny benefits with impunity.
10/05/09
So none of these theories are right, it is just more diagnosis. Only severely non-verbal autists were called autists in the 70s, and now everyone on the spectrum gets diagnosed.
10/05/09
10/05/09
" cured " and that she and her husband are " bad " parents because they don't home school , shop at Whole Foods, and can't afford the alternative therapies that Ms. McCarthys son gets. That broke my heart. Here is a mom doing the best that she can - being made to feel like a " bad mom " because of people like McCarthy. ( off my Soap Box now )
10/05/09
10/05/09
I'm going to blame high fructose corn syrup. Because it's convenient for me and my distaste for the sheer number of products that use it. I admit to having no scientific basis to blame it, I just don't like the junk.
But truthfully, is it really becoming more widespread, or is there just more awareness of the autism spectrum? Or possibly diagnosis-happy parents and docs (as we experienced with a lot of false ADD kids in the 90s and early 00s)? Genetic testing will be great to have and I certainly hope they get it down pat relatively soon.
10/05/09
I also think it's compounded by the fact that in our lifetimes we have to encounter so many more strangers and have more advanced social skills. I can see how an autistic child would just be kept at home 100 years ago and considered "funny" but without something "medically" wrong with him. It's the nature of modern society that any kind of unusual behavior must have a disease behind it and be dealt with accordingly.
10/05/09
10/05/09
The spectrum means that people like me--a bit odd, a bit obsessive, socially inept--are autistic, along with people like my patients at work, who may be nonverbal and not completely toilet trained at 10, or 15.
10/05/09
I don't know nearly enough about autism to have an opinion on those questions, but they seem like potential reasons why thinking about autism with a spectrum model might give a lot of false positives. It is probably the best way to approach it - but it still may have this problem.
10/05/09
@Her Grace: I would be shocked if there weren't any people with Autism on Jez.
10/05/09
10/05/09
10/05/09
That's a reason why this methodology is not a good one, but that defect would cause an underestimation of how many are affected, so it would not explain the increase, only point to this increase being even bigger.
10/05/09
10/05/09
I mean they seem present this as a possible mistake that would cause the figures to be so high, when that it would cause them to be lower, not higher.
I know the post doesn't explicitly say that, but it seems to point in that direction, which is a wrong one.